Well, since last post I went back to my primary care doc and he said there was nothing else he could do for me. He wants me to go up to Emory and see a rheumatologist. I also sent off some blood to get tested through Igenex the same day. It hasn't come back yet, but I am eagerly awaiting those results.
I also went down to Jacksonville to see a new LLMD. She was amazing. She not only gave me a protocol, but one for my son as well. I left that office so happy and hopeful. I was bummed that she confirmed it must be not only Lyme, but Bartonella and Babesia. But the extensive course of antibiotics, antimalarial, vitamins, supplements etc. was very impressive and I couldn't wait to start.
I ordered all the vitamins and supplements and those were about $150 for a months supply.
Then today I dropped off my scripts at the pharmacy and was really hopeful this new insurance would pay for most of it. Nope. The coupons that I print out at goodrx.com were way cheaper than insurance!!!! I don't know if they just didn't cover them or what. But those are $380 and are still at the pharmacy for that reason. I also need to still get my two nose sprays from that compounding pharmacy in Atlanta. Those are $270 I believe.
At this point doing the Cowden like I wanted to would be wayyyyy cheaper. $230 a month compared to the $800 for the next two months and after the nose sprays it would drop down to $530 a month.
Holy shit. There is no way.
Back to where I started.
Hopeless.
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