So, my insurance came through on my scripts. Thank goodness :) They ended up being $20 each, so $120 for them all. Much better than without insurance. Phew.
So I did one day of the protocol and was sick sick sick! I couldn't possibly manage to work AND treat so I held off and put in my two weeks notice. I have been done with work for a few days and am about to start the protocol again. I already feel so weak, fatigued, my joints are hurting so bad, migraines are out of control.
My mom got me a wheelchair. I needed one so bad. I cant stand for very long without feeling like I'm going to pass out. I have to have someone take me to the grocery store and use the wheelchair. I feel like I can't drive right now. I wouldn't want to put mine, my son's or anyone else's life on the line. So, I guess that means I need to start this protocol ASAP.
I've also been very angry and sad. Its hard to just sit on the sidelines and not be able to help as much as I used to with my son. And I see my husband get frustrated with my son and how terrible the house looks, so I try and get up and help and just end up on the floor or really overdoing it and hurting bad.
My eyesight has been blurry with floaters lately. The list of symptoms is endless. I can't wait until I have a good day again so I can get my son and myself out of this house. It is so hard just to care for him when I feel like death...doing this protocol (which takes a lot of effort in itself) is going to be really really hard. I don't know how I'm going to pull it off.... I really don't.
Wednesday, March 26, 2014
Thursday, March 6, 2014
From Hopeful to Hopeless
Well, since last post I went back to my primary care doc and he said there was nothing else he could do for me. He wants me to go up to Emory and see a rheumatologist. I also sent off some blood to get tested through Igenex the same day. It hasn't come back yet, but I am eagerly awaiting those results.
I also went down to Jacksonville to see a new LLMD. She was amazing. She not only gave me a protocol, but one for my son as well. I left that office so happy and hopeful. I was bummed that she confirmed it must be not only Lyme, but Bartonella and Babesia. But the extensive course of antibiotics, antimalarial, vitamins, supplements etc. was very impressive and I couldn't wait to start.
I ordered all the vitamins and supplements and those were about $150 for a months supply.
Then today I dropped off my scripts at the pharmacy and was really hopeful this new insurance would pay for most of it. Nope. The coupons that I print out at goodrx.com were way cheaper than insurance!!!! I don't know if they just didn't cover them or what. But those are $380 and are still at the pharmacy for that reason. I also need to still get my two nose sprays from that compounding pharmacy in Atlanta. Those are $270 I believe.
At this point doing the Cowden like I wanted to would be wayyyyy cheaper. $230 a month compared to the $800 for the next two months and after the nose sprays it would drop down to $530 a month.
Holy shit. There is no way.
Back to where I started.
Hopeless.
I also went down to Jacksonville to see a new LLMD. She was amazing. She not only gave me a protocol, but one for my son as well. I left that office so happy and hopeful. I was bummed that she confirmed it must be not only Lyme, but Bartonella and Babesia. But the extensive course of antibiotics, antimalarial, vitamins, supplements etc. was very impressive and I couldn't wait to start.
I ordered all the vitamins and supplements and those were about $150 for a months supply.
Then today I dropped off my scripts at the pharmacy and was really hopeful this new insurance would pay for most of it. Nope. The coupons that I print out at goodrx.com were way cheaper than insurance!!!! I don't know if they just didn't cover them or what. But those are $380 and are still at the pharmacy for that reason. I also need to still get my two nose sprays from that compounding pharmacy in Atlanta. Those are $270 I believe.
At this point doing the Cowden like I wanted to would be wayyyyy cheaper. $230 a month compared to the $800 for the next two months and after the nose sprays it would drop down to $530 a month.
Holy shit. There is no way.
Back to where I started.
Hopeless.
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